- Harper was born 9-23-13, after her mom had the picture perfect pregnancy and delivery. She passed all newborn screenings in the hospital, and went home appearing to be a perfect, healthy newborn. At her 1 week well-baby check, the pediatrician heard a small heart murmur. Harper was referred to a pediatric cardiologist for a routine echo just to be sure it was nothing more than the small hole in her heart that so many babies are born with that would resolve itself on it's own.
Two weeks later, Harper's parents took her in for that appointment. As they were called back, they were just normal parents expecting nothing. But in that appointment, their lives were turned upside down. Harper was diagnosed with a single ventricle heart, along with anomalous veinous return, pulmonary stenosis, and an interrupted inferior vena cava. Three days later, Harper was diagnosed with Heterotaxy Syndrome. God has had His hands on little Harper's body from the day she was formed in her mother's womb. Ironically, some of Harper's heart defects are actually working together in her advantage. At this time, the doctors have been able to put off Harper's first open heart surgery because her heart and lungs are functioning together optimally at this time. Her first surgery is expected around her first birthday. This will be a Kawashima procedure, which is a modified Glenn. During this procedure, they will reroute Harper's blood circulation so the the blood flowing to her lungs will bypass her heart. We are so grateful for all of the prayers and support!