We were induced March 18th. When I was 21 weeks pregnant the doctors told us we had to go to Syracuse to get a new sonogram. This was because Rome "couldn't get a good picture of the heart". We got our sonogram. They take us in to a conferance room. Where we wait for like what seems like forever. The doctor came in. His name is Dr. Silverman. He tells us that our son has a very very rare heart defect called Hypoplastic Right Heart Syndrome. Also known as HRHS. He tells us abortion is on the table. We proudly decline. Dr. Silverman is a very compassionate man. He answers all of our questions and gives us his email address. He orders a fetal echo. Dr. Smith is our cardiologist. He has received many awards for what he does and for the care he shows his patients. He takes many pictures to get the best diagnosis as possible at this time. Then we talk. He tells us HRHS is an overall term for problems on the right side of the heart. He then tells us what he believes is wrong with Zachariah's heart. Pulmonary Atresia with intact Ventricular Septum, Severe Tricuspid Valve and Right Ventricular Hypoplasia. Pulmonic Atresia means the valve to the lungs is completely blocked. Right Ventricular Hypoplasia means the pumping chamber is underdeveloped. Although underdeveloped it is still growing! His first procedure is going to happen in Syracuse 1-3 days of life. This is called Balloon Atrial Septostomy. This will keep the whole between the top two chambers open forever. Then is surgery within 1-2 weeks of life. This surgery will happen in Rochester. It's called a shunt. The shunt will be placed between the Aorta and the artery going to the lungs. These procedures are basically bypassing the bottom right chamber of the heart. Making this a 3 chamber heart instead of 4. There isn't much information on this. It's just that rare. 75% of infants make it threw all 3 main surgeries. I ask for prayers for my heart warrior, Zachariah! His heart defect stated at only 2 months gestation. There is no known cause or even cure. So Zachariah is now 2 months old. He has 16 cardiologists. He had his first open heart surgery at 6 days old. We don't know when the second open heart will be. Zachariah has a feeding tube. We left the hospital May 6th. Home just in time for mothers day!!!! I met 2 families in Rochester that I absolutely love. Sadly their babies gained wings. For Zachariahs first open heart surgery he was given a 50/50 chance because his coronary arteries are very disfigured. Zachariah is doing great. He can still pass away at any moment because of his heart defect. We almost lost him on April fools day. But he has come so far! He has a feeding tube but can eat from mouth now. He looks better then most of the heart babies the doctors say. His weight is bigger then most heart babies with his defect. He has proven the doctors wrong many times. they hospital use to say he is a scarey baby because things can turn deadly fast and without warning. He is our miracle!!!!! Zachariah had another heart surgery on October 30th, 2013. He came home only 6 days after having his second heart surgery!!! A common cold is what caused us to have his second heart surgery! He is thriving and soon his feeding tube will be taken out! We have not used it at all since his last surgery. Zachariah has more heart surgeries to come and one of those future surgeries will be a heart transplant. Right now his heart is trying to fix itself. That isnt a good thing due to us already fixing that part. His heart is making veins in his heart to get more oxygen. He might need surgery to coil them veins. But he goes to his routine cardiologist appointments!!! We love Dr. Attalla!